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CACCC's Heart to Heart® Cards: A Novel Advance Care Planning Tool
Heart to Heart® Cards: A Novel, Culturally Tailored, Community-Based Advance Care Planning Tool for Chinese Americans
Heart to Heart® Cards: A Novel, Culturally Tailored, Community-Based Advance Care Planning Tool for Chinese Americans
Cards represents the first, theory-driven, culturally-tailored Advance Care Planning tool for Chinese Americans
San Jose CA – February 16, 2021 – The Chinese American Coalition for Compassionate Care (CACCC), in collaboration with authors: Zhimeng Jia, MD and Richard E. Leiter, MD, MA, both of the Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute, MA; Hillary D. Lum, MD, PhD of the Division of Geriatric Medicine, University of Colorado School of Medicine, CO and Cynthia X. Pan, MD of the Division of Palliative Medicine and Geriatrics, NewYork-Presbyterian Queens, NY, is proud to announce the recent publication of Heart to Heart Cards: A Novel, Culturally Tailored, Community-Based Advance Care Planning Tool for Chinese Americans in the American Journal of Hospice and Palliative Medicine®. CACCC’s Heart to Heart cards represent the first, theory-driven, culturally-tailored Advance Care Planning (ACP) tool for Chinese Americans. More research is needed to establish its impact on ACP conversations and outcomes.
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“The publication of this article is a watershed moment,” said Sandy Chen Stokes, founder and board member of CACCC. “It takes our proof of concept of the Heart to Heart cards and café into the next level.”
“Though it has taken more than 18 months to have our manuscript accepted for publication, it was quite fortuitous in how it all came together with our collaborating authors: Drs. Richard E. Leiter, Hillary D. Lum and Cynthia X. Pan, during a global pandemic,” said Zhimeng Jia, MD with the Department of Psychosocial Oncology and Palliative Care, Dana-Farber Cancer Institute. “We were all very impressed with the data CACCC had collected since the introduction of their Heart to Heart cards and the Heart to Heart® Café events with the Chinese American community from 2014-2019.”
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The top three (3) Heart to Heart cards selected by survey respondents were:
- “If I’m going to die anyway, I don’t want to be kept alive by machines.” (25.5%)
- “I don’t want to be a burden to my family.” (21%)
- “I don’t want to suffer.” (19.7%)
“This study shatters the myth that Chinese Americans do not wish to discuss advance directives. We are looking forward to conducting a research study at NewYork-Presbyterian Queens using CACCC’s ACP Heart to Heart cards for hospitalized Chinese American patients,” said Cynthia Pan, MD. “The goal is to study Chinese American patients' engagement in ACP, in starting meaningful end-of-life conversation, to provide patient-centered care.”
“CACCC will host two free virtual Heart to Heart Cafés: one in Mandarin and Cantonese and one in English,” said Shirley Pan, director of CACCC. “Participants will learn how to use the Heart to Heart cards as well as learn tips on how to start the conversation with their family members, loved ones and their physician.”
Heart to Heart Café
Saturday, March 13: 10am-12pm, PST (1pm-3pm, EST) conducted in Mandarin and Cantonese
Saturday, March 20: 10am-12pm, PDT (1pm-3pm, EDT) conducted in English
Each participant who completes a program evaluation at the conclusion of the event, will receive one (1) deck of Heart to Heart cards sponsored by AARP.
To register, visit caccc-usa.org, or leave voice message at 866-661-5687, or email info@caccc-usa.org.
This is the DOI (Digital Object Identifier) to the American Journal of Hospice and Palliative Medicine article published on January 27, 2021: https://doi.org/10.1177/1049909121989986
About AJHPM
American Journal of Hospice & Palliative Medicine (AJHPM) is a peer-reviewed journal, published eight times a year. In 30 years of publication, AJHPM has highlighted the interdisciplinary team approach to hospice and palliative medicine as related to the care of the patient and family. For more information, visit https://journals.sagepub.com/h...
About CACCC
Providing compassionate care, community service, education and outreach to the Chinese community and to the healthcare professionals who serve them, since 2005, the Chinese American Coalition for Compassionate Care (CACCC) is comprised of 150, local, state, and national organizations and over 1500 individuals. CACCC is the first coalition devoted to addressing end-of-life care concerns of the Chinese community. Recognized nationally, in Taiwan and in China, CACCC provides education and support in advance care planning, palliative care and pain management, and offers training in respite, hospice, grief care and mindful self-care. For additional information, visit caccc-usa.org or email info@caccc-usa.org.
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