Neighbor News
Why We Walk in the Steps2Cure NF Virtual Walk & Run
Amy and Tom Rodgers of Albany to walk on behalf of daughter to support non-profit organization Neurofibromatosis Northeast
Why We Walk
By: Amy and Tom Rodgers, Steps2Cure NF Walkers
Steps2Cure NF Virtual Walk & Run/May 1-May 31
Team Mya
Why Do We Walk?
We walk for our daughter Mya. She is 18 and a senior at Notre Dame Bishop Gibbons. She will be attending Siena College in the fall to pursue her bachelor’s degree in psychology.
Mya was diagnosed with NF1 when she was 6 months old. Her life has been a series of doctor’s appointments, MRIs, surgeries, braces and X-rays. From the young age of 8 until she was 12, she wore a Boston brace for scoliosis 22 hours a day. If you don’t know what that is just think of a rigid plastic brace that goes up to your chest, into your arm pits and down to below your hips. It helped stop her scoliosis without surgery, but it was rough. She has had numerous cutaneous neurofibromas removed and has a few plexiform neurofibromas. She had a large femur lengthening surgery two years ago and was in a wheelchair for 7 months. She just had a hip replacement 6 months ago. She also has a learning disability. However, even after all that she is the most wonderful, well rounded, compassionate, loving, funny, kind, smart and driven young woman you will ever meet. She loves football, cheerleading, dance, and art. She is the most amazing big sister to her little brother.
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She is the reason we walk. She is an inspiration. She is our “why”.
Donations to Team Mya can be made at: https://secure.frontstream.com/steps2cure-nf-virtual-walk-run/participant/AmyRodgers
Find out what's happening in Albanyfor free with the latest updates from Patch.
About the Steps2Cure NF Virtual Walk & Run
The Steps2Cure NF Walk & Runs are virtual again this year! With a virtual walk, you are able to train and participate at your own pace while practicing social distancing and then, anytime during May NF Awareness Month, walk, run, ride, or swim 3 miles for Neurofibromatosis Northeast!
Register here: https://secure.frontstream.com/steps2cure-nf-virtual-walk-run
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About Neurofibromatosis Northeast
Neurofibromatosis Northeast is a non-profit organization based in Burlington, MA that was formed by a group of people who were in some way affected by the genetic disorder known as neurofibromatosis (NF). Their mission to bring hope to those affected by neurofibromatosis and allied disorders. To learn more about neurofibromatosis, visit the Neurofibromatosis Northeast website at www.nfnortheast.org or call 781-272-9936.