• FSH SocietyNeighbor

  • Lexington, MA
  • Website

Affecting an estimated 870,000 people worldwide, FSHD is one of the most common muscle dystrophies. The genetic disorder presents a lifelong progressive loss of skeletal muscles, typically attacking the muscles of the face (facio), shoulder blades (scapula) and arms (humerus), though it can progress to affect any skeletal muscle. Approximately one-quarter to one-third of patients end up in wheelchairs.

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