Advocating for Lung Cancer Research with the Lung Association

30-year-old Courtney Pope is a Bristol, CT resident that never imagined she’d become an advocate for funding for lung cancer research… that is until her father was given a diagnosis of stage 4 adenocarcinoma non-small cell lung cancer.

Eric Pope was only 58 when he detected a growing mass on his neck. Eager to avoid worrying his only daughter, he kept the referral to oncology quiet for weeks, until she found it by accident. Courtney – only 27 at the time - sprung into action and became her father’s caretaker and advocate over the next 3 years. In her care, he underwent several procedures, endured palliative radiation, months of chemo, and weight loss of over 50 lbs. Eric and Courtney were originally told he would have 1- 2 years to live – but despite initial setbacks and the cancer traveling to his tonsils and liver, Eric is now thriving over 2 years later.

2020 was an especially hard year with increased concerns of COVID-19 and how it might impact the family given the increased risk for severe symptoms for those with existing lung disease. Together, not only did they stay healthy and overcome each challenge, but they even managed to celebrate Courtney's wedding, which was scaled back in order to accommodate safety guidelines.

She said, "There was a time that I didn’t know if my dad would be at my wedding – so even though 2020 weddings had a few extra obstacles, I wouldn't change that walk down the aisle for anything."

In her role as an advocate, Courtney found support with the American Lung Association, first learning about the Hartford Fight for Air Climb in 2019 because it was planned for April 13th, the birthday she shares with her dad. She felt it was a sign, and registered, beginning her journey as a change-maker for lung cancer.

As she and her dad embark on their second Advocacy Day this March 17th to virtually meet with their representatives in Congress, she has two important asks:

“The hardest time in our lives was made just a little bit more manageable because of the Affordable Care Act and the healthcare exchange. A year into my dad’s diagnosis, he was kicked off his benefits – and we couldn’t afford the $700 a month COBRA. Thank goodness the exchange offered more affordable insurance that allowed him to get the treatment he needed. My fiancé and I are helping as much as we can financially, but it turns out cancer is expensive. We, like most families, would give every last dollar to save someone we love, but it's so important that people have the ability to have stable, affordable health care options – and coverage for pre-existing conditions. It’s a matter of life and death.”

“I also am also hoping to push our representatives towards more funding for lung cancer. No family should have to deal with this excruciating disease – and there is hope if they put money behind research for a cure.”

Advocacy Day is just one element of Courtney's efforts to cheer her dad on. She's also participating in this year's Fight For Air Climb, where she and her team hope to outraise their $4,000 total last year. This year's Fight for Air Climb will offer a virtual option, as well as an outdoor in-person option at Dunkin Donuts Park on June 19th. You can donate to Courtney's team here, or register to participate yourself!

Courtney and her dad Eric have lived in Connecticut for over 25 years.